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NFDI4Health
National Research Data Infrastructure for Personal Health Data
News
NFDI is part of the EOSC build phase
NFDI4Health Workshop: “How to Podcast”
NFDI4Health at SWAT4HCLS 2025
Events
NFDI4Health Open Friday Lecture: Anonymisation & Legal Aspects
TMF AG Meeting on Data Quality and Transparency: EHDS Planning for the Data Quality Label
Webinar Meet-the-Data@Health Research: Data from NFDI4Health in Focus
What is NFDI4Health?
NFDI4Health – the National Research Data Infrastructure for Personal Health Data – deals with data generated in clinical trials, epidemiological and public health studies. The collection and analysis of these data on health and disease status and important factors influencing it are an essential component for the development of new therapies, comprehensive care approaches and preventive measures in a modern health care system. Although these data already meet high content quality standards, they often do not fulfil the requirements of the FAIR principles:
- The findability of data is often limited due to the lack of international standards for registration and publication.
- Possibilities for data use by third parties are usually unclear.
- Databases are often not interoperable, e.g. due to the great methodological heterogeneity in the recording of exposures and health endpoints.
- Furthermore, privacy requirements and informed consent of study participants restrict the reuse of data.
Task Areas
TA1 - Coordination
TA1 focuses on project coordination measures including overall project financial controlling, dissemination, public relations and outreach to political decision makers. Read more
TA2 - Standards for FAIR Data
TA2 evaluates and develops standards for findability and interoperability. This concerns data management and publication policies, (meta-)data standard harmonization, data quality assessment as well as standardization of health data access. Read more
TA3 - Services
TA3 uses the standards provided by TA2 to deliver NFDI4Health services, service enabling tools and the necessary technical support. These include a central search service, tools supporting data quality assessments and metadata annotations. They also include services for data use and access, as well as data/software repositories and archiving services. Moreover, TA3 offers advanced distributed data analysis services. Read more
TA4 - Community & Networking
TA4 addresses the needs and demands of the scientific community, informs and trains our user community and organizes community participation by disseminating tools and knowledge to and triggering feedback from the community. Read more
TA5 - Use Cases
TA5 implements the standards and services developed in TA2 and 3 in thematic use cases which cover a broad range of needs expressed by the user community during the planning phase of NFDI4Health. Each use case will serve as an example for a specific challenge for FAIRification of personal health data. Based on these use cases, we will develop and apply practical solutions that will facilitate the whole process from findability to reuse. Read more
TA6 - Privacy & Data Access in Concert
TA6 is concerned with the legal framework conditions (EU GDPR) of data protection and data privacy, secure record linkage and solutions such as broad consent and differential privacy, e.g., via simulation of synthetic health data. Read more
Participation
Community
Citizen Science
Our Services
Health Study Hub
The German Central Health Study Hub allows researchers to publish their project characteristics, documents and data related to their research project in a FAIR manner or to find information about past and ongoing studies.
Data Train
The Data Train cross-disciplinary graduate training programme, a core element of the NFDI4Health training approach, aims at building the next generation of data-savvy researchers in the biomedical sciences.
Personal Health Train
Local Data Hub
Data publication
Health data, as collected in clinical trials and epidemiological, as well as public health studies, cannot be freely published, but are valuable datasets whose reuse is of high importance for health research. NFDI4Health has established a metadata standard and process for the publication of health studies to make health data FAIR.
Data harmonisation
Data Quality Assessment
DataSHIELD
Our Partners
Funding
The partners of the NFDI consortium NFDI4Health are funded by the German Research Foundation (DFG) within the framework of the “Agreement between the Federal Government and the Länder Concerning the Establishment and Funding of a National Research Data Infrastructure” of 26 November 2018. To coordinate the activities, the partners of NFDI4Health participate as far as possible as members in the National Research Data Infrastructure (NFDI) e. V. association and participate in the various bodies and other structures of the association in accordance with its statutes.
